July 19, 2015 Smoke from the Storm

Here I’m singin’ happy birthday
Better think about the about the wish I make
This year gone by ain’t been a piece of cake
Everyday’s a revolution
Pull it together and it comes undone
Just one more candle and a trip around the sun….Jimmy Buffet

July babies are  ‘special’. Conceived some where between Halloween and Thanksgiving. Developing and growing through Christmas, New Years, Valentines Day and Easter. By the time we are born, me and my Mom have celebrated many times and I was ready for a July birthday.  Friday, 9:46am on the 22nd of July, at Syracuse General Hospital  on Castle Street, I made my entrance-screaming and howling.  6 pounds  4 ounces. Amazing. My Mom named me after her sister Jane.  What a great lady to share a name with.

Countdown is on, Wednesday is the day. Made it to 66.  Great ride. I would not change anything in my life, if I could do it again, I would.

This past week marked the first change in my treatment for ‘Osteomylitis’. Monday morning call from Dr. Shockley, was the demise of one antibiotic -Cubicin.  Tuesday morning office appointment and blood draw with Doc. He was very reassuring that the remaining  antibiotic ‘Cefepime’ would be ample coverage.  A possible new antibiotic maybe added this Tuesday pending labs.  As always Doc Shockley and his office staff  is a fresh breath of air -always look forward to Tuesday’s mornings.

Saturday July 18th was my birthday ‘present to me’ pick up day.  My first present was my hair.  My niece, Dee and hair color specialist  -at 7am placed the Vella Balsam R-V 4 on my hair and 45 minutes later……..no more white, just Red-Violet hair color.

Red hair to go with new RED car

Red hair to go with new RED car

My second present was my new car pick up day. My niece Debo, took on the challenge to drive to Pahrump to get the car.  It was an outstanding day, laughed and I got to bring ‘my new baby’ home to Las Vegas. My new baby’s name is Sasha. She is RED. She is a Chevy. She is a Corvette.  I am ‘Living the Dream’.  Happy Birthday to me.

Home in Vegas

Home in Vegas

Deb, Jane

First ride in Sasha...watch out the Hillenbrand women are on the loose

First ride in Sasha…watch out the Hillenbrand women are on the loose

I want to thank everyone who reads this Blog weekly and contacts me with wonderful comments. Thank you for the birthday cards via snail mail…via email. It is all of you who make my journey fulfilling. Watch out for smoke over Las Vegas on the 7/22—-it is the candles on my cake burning !!….Peace and love

No you never see it comin’
Always wind up wonderin’ where it went
Only time will tell if it was time well spent
It’s another revelation
Celebrating what I should have done
With these souvenirs of my trip around the sun

I’m just hangin’ on while this old world keeps spinning
And it’s good to know it’s out of my control
If there’s one thing that I’ve learned from all this livin’
Is that it wouldn’t change a thing if I let go

Yes I’ll make a resolution
That I’ll never make another one
Just enjoy this ride on my trip around the sun
Just enjoy this ride……..

Jimmy Buffet  “Trip around the sun”

 

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July 11, 2015 My Storm Chasers

‘I thought if I could touch this place or feel it
this brokenness inside me might start healing.
Out here its like I’m someone else,
I thought that maybe I could find myself
if I could just come in I swear I’ll leave.
Won’t take nothing but a memory
from the house that built me.’…..Miranda Lambert

Mc Donald Road House Syracuse New York 2002

Mc Donald Road House
Syracuse New York 2002

Lilac bush, McDonald Road house, Winter back deck

Lilac bush, McDonald Road house, Winter back deck

 

Journeys are faithful travelers who move you through life, peaks and valleys, success and laughter. Some of you know my “journey” so this is for the readers who do not.

Born in Syracuse New York on July 22, 1949. to the ‘fun loving story telling, beer drinkin’ Hillenbrand Clan.  Fifth child and appropriately named baby Jane.  Three brothers, 20 years, 18 years and 10 years older- yes I was a pain in the ass to all. Early memories remain of always being the center of attention, spoiled rotten and truly blessed to have the family I grew up in.  Brothers married, more family, I became an Aunt Jane at age 5.  Three brothers produced 19 nephews and nieces over fifteen years. Holidays where great, as my Mom was the best cook in the world for meals, and our family is a story telling family so holidays where full of talk and chatter and instilled basic ethics and philosophies to move through life with. Our home was in the country and the address was like the song. ‘McDonald’ road house. And like the “Old McDonald” song, we did have a ‘chick chick’ here and  ‘moo moo’ there. The walls of the house had many stories attached to them, gave me great shelter and security growing up.  My birthday was always in the summer, and always a party -Always. Family would descend for the outdoor event. Stories, laughter and candles on homemade chocolate cake with Vanilla frosting……..

Summer at the McDonald Road house.Deer are in the ochard

Summer at the McDonald Road house.Deer are in the ochard

 

I moved away when I was 17, Nursing school. Weekends and holidays the trek back to the homeland.  Always a warm hug to go home.

 

 

This week in my treatment of Osteomylititis  was a stellar week.  Infusing daily and feeling upbeat .  Tuesday was my weekly appointment with Dr Shockley, my ID doctor. Week 4 of blood draws and PICC dressing change with infusion. -The “Doc” is unique and like a ‘mad chemist’ with antibiotics. I have not found the correct words to describe his personality- but it is a ‘warm hug’ . Motivation gained from his office and office staff. I look forward to my Tuesday morning events.  My bonus this week was had an appointment to follow at Dr Beajow’s office.  Dr B is my Internal Medicine Doc. Great man. Excellent Doctor.  He manages all my ills for three years. ( I know -longer than some of my marriages !!!)  Goes to show you some MEN can put up with me- especially if they are in your Medical Insurance Network.

Wednesday – Bucket list item completed. Picked up my new healthcare proxy, will and POA papers from my Nevada attorney. This updates all previous entities.

Thursday and Friday  We has Rain the in desert. Temperatures dropped to an unseasonably low of 94 degrees.  For all who wonder- “Hell has not froze over”.

Some of you have asked me about the PICC dressing and how do I keep it dry in the shower and pool (really??)   You will need the following: 1- 1 dry wash cloth or hand towel, 2- 4 medium rubber bands  3- 1 box of GLAD “press and seal”  Wrap.

Cover the PICC line and dressing with was cloth or small towel. Use 2- rubber bands on the wash cloth- ohe on the top and one on bottom. This covers and hold the cloth in place  You can adjust and fine tune, to make sureeveryonn  Glad Wrap is next- sometimes 2 extra hands can help. Tear off 18″ to 20″‘. Start on cloth- place from elbow to arm pit (shoulder). Press the Glad Wrap on areas that touch the skin. Wrap the circumference of the arm.  2 rubber bands placed- elbow and arm pit.  Waterproof cover. PICC dressing stays dry. Photos are below.

Rastus and I are enjoying our music lesson on Saturdays with Patrick Worley. Banjo playing is fun, Patrick is a super professor.

Also this week I received an email from ‘penned named Maggie Trout’. You can see her comment on last weeks blog and she referenced the McDonald house. I thanked her and emailed her- how do I know you?  She is a friend from high school, who is still painting and living in Maine……Hi Maggie !!

Peace and Love OX Jane

 

In the twilight glow I see her
Blue eyes crying in the rain
When we kissed goodbye and parted
I knew we’d never meet again

Love is like a dying ember
And only memories remain
And through the ages I’ll remember
Blue eyes crying in the rain…..Willie Nelson
(Ode to the McDonald Road House)

Photos for waterproof covering of PICC

Dry cloth over PICC dressing and PICC.Rubber bands ro secure at both ends

Dry cloth over PICC dressing and PICC.Rubber bands ro secure at both ends

All Items that are needed: GLAD Wrap-Press and seal; washcloth/small towel; 4-rubber bands

All Items that are needed: GLAD Wrap-Press and seal; washcloth/small towel; 4-rubber bands

Glad Wrap applied- -about 2 foot piece; wrap arm, rubber bands at each end...waterproof !!

Glad Wrap applied- -about 2 foot piece; wrap arm, rubber bands at each end…waterproof !!

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July 4, 2015 Weapons to Conquer the Storm

When all is gone in death and dust
The name of you will always carry on
We’re caught between the shadow and the light
I know we will be guided by the dark

Into the wild we went
Unaware of the hell they sent
We’re crossing the wastelands again
Lost kids coming home”. 

Author unknown

Treatment plan is going well,  infusing twice a day. Morning breakfast menu is 1000mg of Cubicin infusions and a side dish of 500mg Cefepime infusion.Yummy. Appetizer is 0.9 Saline flush. Dessert  is Heparin flush.  Very alchemy diet.  I also infuse 500mg Cefepime 12 hours later.  These are my main warriors in this storm and battle of Osteomyelitis.

IV infusion Meds and tools

IV infusion Meds and tools

Tuesday June 30, visit to the ID Doc, Dr Shockley. What a great upbeat office.  I look forward to this weekly visit for Labs, encouragement and laughs.  Doc is really cool and takes all the time to answer my ‘crazy’ questions. Toe exam, and lab review from last week. The antibiotic infusions are the ‘Weapons of choice’ by Doc.   Feeling warm fuzzies and gaining more strength time to take on a daily infusions this week.

Wednesday July 1, new month -Ruby and Larkspur- all July babies know them well. This my birthday month. 1949- My mother and fathers ‘change of life’ baby-  and did I ever change their life !! More to come on this topic as the old birth date approaches.

Thursday, July 2, welcomed a new member to my family. A trip to music shop ‘Guitar World’, my new toy is a 5 string ‘Banjo’.  His name is ‘Rastus’.  First lesson is Friday 4pm.  It is part of my ‘bucket list’. More on Rastus in future blogs. I just may play you all a tune……..

Friday , Saturday July 4th, Sunday days off from work. Peace, tranquility, and everything I want to do, at a snails pace.

Last but not least.  Euripides. We have been tethered  ‘ together’ 12 days.  No fights. He is behaving.  I think I will keep him .He has lasted longer than some of my marriages !!

Peace and love.

Euripides

Euripides

Someday I’ll wish upon a star
And wake up where the clouds are far behind me.
Where troubles melt like lemon drops,
High above the chimney tops,
That’s where you’ll find me. “

Songwriters: Harburg, E Y / Arlen, Harold

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Facing the Storm: First Week of Treatment

6/22/2015
A very merry unbirthday to me,
(To who?)
To me,
(Oh you!)
A very merry unbirthday to you,
(To me?)
Yes you,
(Oh me!)
Lets all congraulate us with another cup of tea,
A very merry unbirthday
Tooooooooo
Youuuuuuuu
From Alice in Wonderland by Lewis Carroll
Read more at http://www.lyrics.com/unbirthday-song-lyrics-disney.html#IsPsw66wZjGvSL2t.99
Monday morning, Day One
Today I had my PICC placed at Sunrise Medical Center Infusion Center. Except for eighteen months in the 1970’s, when I was employed in the Operating Room, I never had the opportunity to use the Medical Center.  Today is also my unbirthday,on the 22nd of each month except July, I have for years celebrated this day. A marker for future goals in my life.
Registering at admissions, filling out more forms in the Infusion Center. Robert, RN BSN is the charge nurse and is very upbeat  with introductions and explanation of  today’s placement.
Michelle, RN was my nurse who placed the PICC in my Right Upper arm. ( WOW have I been out of patient care too long.) New computer world for placement of PICC lines. (EKG guided PICC placement proved accurate in consistently guiding the terminal tip to the superior vena cava (SVC). Michelle’s

Michelle, RN

Michelle, RN

skill and knowledge and our conversation throughout the procedure made a rather complicated task painless and very comfortable.  She printed out the placement on my EKG strip to give to the ID MD on Tuesday’s appointment. I told her she truly has a great skill.  This a a very positive experience for day one.  (PICC name is Euripides )

 Next , was a MRI of the Right foot, second toe focus .  Over to radiology, as I was already signed into the hospital, admitting to a new department was minimal.  This MRI is an easy one, as my feet go in the tube….but the earplugs are still needed.  Just lay me down in an air conditioned room, I had a great nap with the MRI magnets snapping in the back ground.  The xray techs are nice, and seeing I am a frequent flier in radiology,we caught up on the latest ‘happening’ in our lives.
6/23/2015  Tuesday morning Day Two
 There is just nothing I can write to describe my Infectious Disease MD, Dr Ronald Shockley. This is my Second office visit. He is  VERY outgoing, happy, borderline crazy-fun and very adept. Comfort zone plus. Anita runs the front desk ( and everything else in the office) and is very compassionate to all patients and questions asked. After the vitals, she told me my MRI report was there from Monday. Being bad, I asked her if it was okay, she said that Doc would talk to me but something about the 3rd toe. 
Center stage- Doc enters the room….warm hug , smiling. A review of the MRI , leaves some question to him. He will be going to radiology and talking to the radiologist for clarification.  He will be prescribing
‘Cubicin 1000 mg/QD   and  Cefepime 2 Gm/BID with blood draw every Tuesday. This  will run for 6 weeks. May change depending on blood work and visual assessment of  right foot.   I know I have the best shot of treating this  right foot and toe with Dr Shockley. I am at peace that this is going to be a positive outcome.
The infusion nurse Faith, has had a flat tire on car coming to the office, so the infusion training starts on Wednesday AM
6/23/2015 Wednesday AM Day 3
Faith,RN is my mentor IV infusion.  When I first saw her I thought -OMG she is 18 years old. But she is not. She is experienced ICU nurse. And a bit older that 18,  her IVP skills are fantastic. Teaching as she talks and spot on with mixing of drugs, delivery of drugs and maintaining the PICC  site.  She is fun, and smart.  I am very lucky (again). 
6/24/2015- Thursday Day 4
On my own.  Refrig full of vials of medications, a box of pre filled syringes to mix and flush, needles, ans alchol pads.  Takes me back to my anesthesia days working in the Operating Room and mixing drugs. But Now I have to infuse myself….all went fine. Two drugs  in the morning and one 12 hours later.    I infuse before work  and after work. Works well
Rest of week went fine.All is good, no reactions from Meds and life is good.

Life has no blessing like a prudent friend.

Euripides

Receiving Room

Receiving Room

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Read more at http://www.brainyquote.com/quotes/quotes/e/euripides149015.html#FIE2x8OWDySWW2yf.99

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June 16, 2015 New Storm Brewing

June 16, 2015 New Storm Brewing.

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June 16, 2015 New Storm Brewing

Osteomyelitis (sometimes abbreviated to OM, and derived from Greek words osteon, meaning bone, myelo- meaning marrow, and -itis meaning inflammation) is infection and inflammation of the bone or bone marrow.[1] It can be usefully subclassified on the basis of the causative organism (pyogenic bacteria or mycobacteria) and the route, duration and anatomic location of the infection.

Once again I have acquired an infection in my lower extremities, right foot second toe.

Last year, I had a toe amputation in March. Everything was went fine with re-cooperation.

In February 2015, a occurrence, with my left foot baby toe. Oral antibiotics stopped the infection, or so we thought.  MRI with contrast reviled Cellulitis and fluid.

The end of May, my right foot second toe became victim. Emergency MD visit started the oral antibiotics, returning in 7 days . Referral to an Orthopedic surgeon foot specialist, moved me up a notch to Cellutitis – rule out Osteomylititis.  MRI of Right foot and back to Internal Medicine MD for referral to Infectious Disease MD for IV infusions.

June 16th was my first visit to the Infectious Disease MD.  Confirmed that the Osteomylititis is back.  730.07 Acute Osteomylititis as the blood work stated.

I have a PICC insertion scheduled on Monday 6/22/2015 (A peripherally inserted central catheter (PICC or PIC line) is a form of intravenous access that can be used for a prolonged period of time) .

Infusions start  on Tuesday 6/23/2015.

Will keep you updated through this blog.

I have a great medical team and you will meet them through this journey.

There is just one life for each of us: our own.

Euripides

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